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Does cancer affect us all equally? Events

Does cancer affect us all equally ?

Mavis and Sasha re-opened the conversation about cancer in March 2021. This time the event was opened by Dr Rose Thompson, Chief Executive and Founder of BME Cancer Communities and Chief Executive and Co-Founder, Sistas Against Cancer. She shared her outstanding contribution and wealth of knowledge around the care and experience of diverse communities affected by cancer.  This was followed by a lively panel discussion around cancer and cancer genetics to help us think about the question ‘does cancer affect us all equally?’

Introduction by Dr Rose Thompson, Chief Executive and Founder of BME Cancer Communities and Chief Executive and Co-Founder, Sistas Against Cancer. Shares her outstanding contribution and wealth of knowledge around the care and experience of diverse communities affected by cancer. (music: Unconditional Bae, Sauti Sol, we do not own the rights to this music).
Panel discussion for the Genetics Engage event ‘does cancer affect us all equally’ with Sasha Henriques, Principal Genetic Counsellor,  Dr Bianca DeSousa, Consultant Cancer Geneticist  and Suresh Rambaran, Specialist Nurse, Founding member, Cancer Equality. (music: Unconditional Bae, Sauti Sol, we do not own the rights to this music)
Panel discussion for the Genetics Engage event ‘does cancer affect us all equally’ with Dr Rose Thompson Chief Executive and Founder of BME Cancer Communities and Chief Executive and Co-Founder, Sistas Against Cancer,  Sasha Henriques, Principal Genetic Counsellor,  Dr Bianca DeSousa, Consultant Cancer Geneticist  and Suresh Rambaran, Specialist Nurse, Founding member, Cancer Equality. (music: Unconditional Bae, Sauti Sol, we do not own the rights to this music)
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Events Research Showcase

Research Showcase

For our first research showcase Mavis spoke to some remarkable women about their work. There are exciting projects using genetics and genomics knowledge to answer many questions around health and disease. Yet each new application of the technology also produces and magnifies dilemmas around ethics and resource allocation. Sasha and Mavis learnt a lot through these conversation about the dilemmas and the complexity of diversity in genetics research.

Mavis and Sasha introduce the research showcase and the conversations Mavis had about inclusivity in genetics this week. Make sure you watch the interviews below ! Sam Cooke, Wonderful World – We do not own the rights to this music
Genetics Engage: What research is happening in genomics? Interview with Vivienne Parry, Head of Engagement at Genomics England. Sam Cooke, Wonderful World, we do not own the rights to this music
Genetics Engage: What research teaches us about diversity in genomics? Interview with Dr Roz Williams , Wellcome Trust Research Fellow – Talking about stem cell research and the complex meaning of race/ethnicity. Sam Cooke, Wonderful world – we do not own the rights to this music
Genetics Engage: Inclusivity in cardiac genetics research, Mavis meets ….Tootie Bueser, Cardiac Nurse – HEE/NIHR Clinical Doctoral Research Fellow; Talking about cardiomyopathy research and the role of research and diverse populations in providing better clinical services , Sam Cooke, Wonderful World – we do not own the rights to this music
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Events

The UK Story of Sickle Cell and Thalassaemia.

This month Sasha and Mavis enjoyed hearing about the story of Sickle Cell and Thalassaemia. The event was introduced by Prof Dame Elizabeth Anionwu the first sickle cell specialist nurse in the UK. It was an enlightening afternoon spent reflecting on the experience of the Sickle Cell and Thalassaemia community and what that could teach us all about improving inclusion in genetics.

Introduction with Prof Dame Elizabeth Anionwu to the Genetics Engage event ‘The UK Story of Sickle Cell and Thalassaemia’
Interview with Prof Kark Atkin about his 20 year experience of research and service development for Sickle Cell and Thalassaemia.
The UK Story of Sickle Cell and Thalassaemia : What can in teach us about inclusion in genetics? Sasha and Mavis talk to friends from the Sickle Cell Society, The UK Thalassaemia Society, The Sound of Sickle and Those involved in the care of Sickle Cell and Thalassaemia Society.

The Sickle Cell Society https://www.sicklecellsociety.org/

The UKTS https://ukts.org/

The Sound of Sickle https://www.instagram.com/tssuk_/

Our Journey, Our Story: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020 is available online at:

http:// www.bcaexhibits.org/exhibits/our-journey/  

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Black men and prostate cancer Events

Movember Black men and prostate cancer

To mark Movember Sasha and Mavis decided to have a chat with Suresh Rambaran, a specialist nurse who has championed engagement and awareness of prostate cancer for Black , Asian and minority ethnic men.

Genetics Engage: A conversation with Suresh Rambaran about genetics, Black men and Prostate cancer, November 2020
Genetics Engage: After a chat with Suresh Rambaran Sasha and Mavis think about true Engagement, November 2020

Suresh kindly shared some links to other organisations you might want to check out.

Cancer Equality – https://cancerequality.co.uk/

Orchid (Male cancer charity) – https://orchid-cancer.org.uk/ 

Can survive UK – https://can-survive.org.uk/

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Black women in genetics Events

Celebrating Black History Month

Black women in Genetics

Our first event took place this year, on the last day of Black History Month, 31st October 2020. We started with a reflection and conversation about what it meant to be a Black woman Genetic Counsellor. Over 50 people attended this first event to hear Malebo Malope and Sasha Henriques respond to questions from Mavis Machirori on many issues around diversity, inclusion and the concerns around genetic counseling.

Genetics Engage: Sasha and Mavis talk to Malebo Malope about genetic counselling and the experiences of Black women who do the job, October 2020
Black women in genetic counselling – FULL AUDIO of the talk on genetic counselling and Black women who do the job, October 2020