Thalassaemia – Genetics Engage

This month Sasha and Mavis enjoyed hearing about the story of Sickle Cell and Thalassaemia. The event was introduced by Prof Dame Elizabeth Anionwu the first sickle cell specialist nurse in the UK. It was an enlightening afternoon spent reflecting on the experience of the Sickle Cell and Thalassaemia community and what that could teach us all about improving inclusion in genetics.

Introduction with Prof Dame Elizabeth Anionwu to the Genetics Engage event ‘The UK Story of Sickle Cell and Thalassaemia’

Interview with Prof Kark Atkin about his 20 year experience of research and service development for Sickle Cell and Thalassaemia.

The UK Story of Sickle Cell and Thalassaemia : What can in teach us about inclusion in genetics? Sasha and Mavis talk to friends from the Sickle Cell Society, The UK Thalassaemia Society, The Sound of Sickle and Those involved in the care of Sickle Cell and Thalassaemia Society.

The Sickle Cell Society https://www.sicklecellsociety.org/

The UKTS https://ukts.org/

The Sound of Sickle https://www.instagram.com/tssuk_/

Our Journey, Our Story: History and Memory of Sickle Cell Anaemia in Britain 1950 – 2020 is available online at:

http:// www.bcaexhibits.org/exhibits/our-journey/